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Fundraiser Raises $35,000 for Children Battling Muscular Disorder

Julie & Sponsor

On April 26th, Hope for SMA (Spinal Muscular Atrophy) raised $35,000 for children battling this muscular disorder at a special fundraiser. The San Clemente organization is helping families struggling with the costs of the needed 24-hour for their terminally ill children.

SMA is the number one genetic killer of infants and children that is passed down when both parents have the abnormal gene.  Only one in 40 people carry the gene for this degenerative disease, and children have a life expectancy of two years after diagnosis.

Many local business supported the auction and raffle at the event including Trader Joe’s, Disneyland, and Athena Spa.There was a musical guest appearance by Lizann Warner and The Alley Cats.

Julie and Jessica Prendiz

“A Night of HOPE was a huge success for HOPE for SMA and the local families struggling with high medical costs,” said Julie Prendiz, President of HOPE for SMA. “The support we received is motivation to continue the fight against this fatal disease and provide hope for cure.”

HOPE for SMA was formed after Prendiz’s granddaughter, Hannah-Rose, died from SMA five days before her first Christmas and one month before her first birthday. Prendiz and her daughter, Jessica, continue to share Hannah-Rose’s story and raise awareness for children suffering from SMA. . For more information, visit www.hopeforsma.org.

Sara Rose

Facts, photos and information provided on behalf of Caryn Bailey.

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